Understanding the Impact on Mental Health with a Rare Disease Diagnosis | PatientWing
Rare disease patients may struggle with the physical symptoms of their condition, but also the psychological burden of living with a disease that is poorly understood, often misdiagnosed, and has limited (or non-existent) treatment options. Managing a rare disease—attending appointments, treatment regimens, and time spent resting or recovering—takes rare disease patients away from doing and spending time with people they love.
